Have you tried turning your fingers off and back on again?
That appears to be exactly what they are doing.
What's the risk of them dying and falling off?
Don't waste it and go rub one off!
This made me laugh, thank you.
My best mate has this. I'm always worried!
Is there anything, as a friend, that I should look out for to help?
The only time I would worry about it for myself is if I’m out in the cold without any protection, and I have to stay out there for a bit. Otherwise, it usually passes before any serious damage can be done. I think you are an awesome friend for caring so much!
You can offer to suck their fingers a little too help puno the blood
Is this similar to waking up at night when you cut off circulation to your fingers and they’re cold and you can’t move them? Or is that just me?
How do you do that to just your fingers? For me it's usually the whole arm from somewhere between the shoulder and elbow.
Feels a bit like that, yes.
It's just you. Everyone has a super power and that's your.
I get this if I’m shopping in Waitrose. I think it’s from gripping the shopping cart so tightly whilst looking at the prices.
it only happen to your hand?
Yes, only to my fingers. I suppose it's possible that it's happened to my toes, and I just didn't notice.
This thread suggests there are enough people around with it to warrant starting a community.
There was a community on the old site.
9.2k subscribers.
How do you get it circulating again? Is it the same kind of pins-and-needles you get when a leg falls asleep?
I actually have this too! For me, it usually happens when my extremities get too cold, and it can take me a bit to even notice it's happening. It usually happens predominantly in my big toes for some reason. For me it just feels like like it's gone completely numb, and I lose all feeling in the digit. I usually break out the heating pad and try to warm it back up until I can feel it again.
This happens to me rarely. Very scary the first time it happened
Yes, first time I freaked out, called my doctor. I thought something very bad was happening!
Same, happens sometimes to a few of my toes while driving for a long time, had it happen once with one of my fingers
I have this happen sometimes when it gets cold out. My fingers may turn this shade or just bluish purple. Warming them, rubbing them, etc seems to bring them back.
I get this on my toes on cold days. It always freaks me out even though I know what's going on.
Samesies! Happens almost anytime I'm drinking a cold drink.
Primary or secondary? Mine is most likely secondary to lung disease but I also have a family history of primary Raynaud's. Got any good glove recommendations?
Primary. And my best glove recommendation is… a mitten! When the fingers are kept together in one chamber, they are warmer. And if one or two go “rogue” the other ones can warm them up. But of course you lose dexterity with mittens.
I lose dexterity anyway and get pain as arthritis like symptoms. That's why it's probably secondary despite the family history and it starting in my teens. Mittens are a good idea, thanks. I usually wear isotoner driving gloves under heavier gloves while outside in winter. That way I can take the heavier gloves off when the heater starts warming up the car.
I use a number:
- Silk under-glove that is useful in a lot of general circumstances around the home. I need a new pair as I bit the top off one finger.
- Thinsulate fingerless gloves. These are my general go-to glove and I need a new pair as my original one are getting a bit frayed.
- Driving/cycling glove. They work with touch screens and are sensitive enough for most tasks when I am out and about.
- Ski glove - for walks in the cold.
My hands and feet are nearly always cold. Maui, sunny day sitting on the beach, cold feet. My hands never look quite as radical as yours, but the dermatologist says it's Raynaud. When I have to handle frozen food or whatever it literally hurts in my chest. Kind of a lot. Do you get that too? ... Weird how I sometimes forget to ask the internet about this stuff but I just googled and apparently chest pain isn't uncommon.
Chest hurting sounds bad. Not a Dr but have Reynaud's exacerbated by ADHD meds and haven't experienced chest pain. Are you sure it directly follows handling frozen food etc? Could be related or coincidental - so many things can cause chest pain, from harmless but temporarily hurty intercostal pain all the way to cardiac arrest. Other details (weight, age, genetic history, other medications/treatments, smoking/drinking/substance status) also matter so it's worth bringing up with your doctor, unless you're in America in which case just ask ChatGPT.
I don't get any chest pain from it, just numbness in my fingers and then pins and needles when the blood comes back.
I take procardia as needed in the winter; works like a charm.
Edit: spelling
Does it hurt? Can you still use them? Are there adverse risks?
It does hurt, starts out as a numbness and then there is a some mild pain. And then pins and needles when the blood comes back. I can still use them but it doesn't feel the best. The biggest risk I'm aware of is frostbite if I am out in the cold. I like to have gloves or mittens with me at all times when it's cold out.
That really is mildly interesting. Thanks for the explanation. Hope you are well!
Oh hey, same disease
There's dozens of us! Dozens!
Your nose or ears are ok?
They do get cold, but I don't know if they ever lose circulation like that.
I get this and my Dad suffered from it too. It's all pretty unpleasant but I have raised my glove game and that has really helped.
My wife has this as well
Same.. sucks pretty bad during the Swedish winters since i work outside in construction.... My turns blue now that im older...
My mom gets this but not very often.
Ditto. She always called it "poor circulation" and explained it's genetic. Didn't know it warranted a name.
I always blamed these particular genetics for my cold induced urticaria.
Only one hand or including the hand without the ring?
It happens to both hands sometimes, sometimes to just one.
What happens when you drink alcohol? I think alcohol thins the blood, right? So, does it happen less?
I stopped drinking a while ago, so I can't answer that accurately. but check out what I found:
An extensive body of data shows concordant J-shaped associations between alcohol intake and a variety of adverse health outcomes, including coronary heart disease, diabetes, hypertension, congestive heart failure, stroke, dementia, Raynaud’s phenomenon, and all-cause mortality. Light to moderate alcohol consumption (up to 1 drink daily for women and 1 or 2 drinks daily for men) is associated with cardioprotective benefits, whereas increasingly excessive consumption results in proportional worsening of outcomes.
So it sounds like 1 daily drink for me might improve the condition but more alcohol will worsen it.
