Do you ever wish you weren't diagnosed with something?
Do you ever wish you weren't diagnosed with something?
Do you ever think that maybe a diagnosis you received may have come back to bite you?
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Celiac is a real pain in the ass and makes me sound unhinged at a restaurant.
I'm just so tired of checking every single ingredient list.
Also tired of terms at restaurants like "Gluten Aware", "Gluten Conscious", etc. Then you find out everything is still going in the same fryer 🫤
Also tired of terms at restaurants like "Gluten Aware", "Gluten Conscious", etc. Then you find out everything is still going in the same fryer
At least they're aware of it.
I really appreciate places like Subway and Taco Bell that just tell you up front they probably have cross-contamination on everything. Most places the workers don't even know what gluten is. When I explain, they think I should just say I don't want bread.
Subway is way off my list. They cut the bread over the meat. You can watch the crumbs fly right in.
Gluten appears to be pixie dust just thrown about in kitchens and mass food production facilities. It is shocking how much contains it or is near it.
I haven't heard of a gluten aware restaurant. But the term sounds irritating.
Are you severe? Any complications as a result?
I'm not sure if I'm severe - I get a three-day migraine that is not unresponsive to medication if I eat gluten. 🤷 I was vitamin deficient and had damage to my intestines, but that's fixed now. I have a lot of other weird food stuff going on, but am still unclear if it is even related. The biggest complication is not being able to eat out easily. And I'm that person at parties that I brings their own food.
I'm so used to not eating out, eating at family gatherings. Cooking everything from scratch with salt only. Low fodmap, low sugar, low fat. I have SIBO. Liver issues, kidney failure, migraines, basically systemic issues. Can't tolerate anything hardly at all. Top 9 allergen free. I feel like a basket case of issues with mine. So I was curious about you.
Oh! I didn't realize it can cause other things. I have hashimotos, can't eat soy or animal products and am dizzy sometimes when holding completely still. You are not alone - I just didn't connect all of mine with celiac.
How would it be better if you hadn't been diagnosed?
I guess I was thinking if I didn't have it, which means I could eat everything without having to ask a million questions or carefully researching products/ingredients.
If I wasn't diagnosed but still had it, I'd be very sick and malnourished.