Skip Navigation
Living with lupus - Murffys Place
  • My daughter was just diagnosed with SLE about a month ago. My mother passed away 7 years ago from it, and my sister has it as well and isn’t doing very well either. If she survives another couple of years I’ll be surprised. It is a horrible thing to go through. I feel so much hurt that my daughter, my own flesh and blood, is going through this. It is one of those things that I cannot really help her to overcome. I feel so powerless. Not looking for advice really, just throwing this out there that there are many people that suffer from this disease. I myself have type 1 diabetes, but it is nothing compared to what you all have to go through. You have my sympathy and I pray that they find a cure to this sometime soon! I hope it is okay if I keep checking on this site for updates, and share them with my daughter if anything applies to her situation.

  • I was made to hang out with my partner's friend's new boyfriend
  • I think most of us have been there at sometime in our past. It is difficult, for sure. I have had to take classes on how to do small talk in order to find ways through this, because I need to be able to work my way through these situations for my job. It is tricks like - you mentioned the guy works construction - so ask him what type of things he is building. How did he get into that position. Is construction what he has wanted to do his whole life, or how did he land that type of job. You need to ask questions that will provoke another person's opinions (whether you like their answers or not) and usually they start to spill their personal stories quite easily. Share a few anecdotes when you can to keep things moving forward. But I agree - it is difficult and very uncomfortable.

  • It's time to recruit for more moderators.
  • Mike - I'm on for 1-10 hours a day (yes, seriously)

    I like being busy and helping others. Providing a safe and structured community makes it better for everyone and if I can help with that, it would be a bonus for me.

    I'm not exactly sure what type of answer you want for this one. Mods delete posts that are inappropriate. Ban people if absolutely necessary. Remind others of the rules and allow them to correct their actions. I'm fine with all of this and much more if needed.

    I don't hold politial views against anyone. I have my own and don't want people to hold them against me because they disagree with them either. If I am here to perform a job/role, that is my #1 priority, and I will do so without any of my own beliefs causing issues.

  • Daily Discussion Thread: Thu 06 Jul 2023
  • I just got word that my 21 year old daughter is positive for a hereditary disease that has taken my mother and my sister already. I'm crushed - right through my soul. She is the kindest and dearest person I know (I may be biased) but this is so hard for her, and me, to deal with.

  • InitialsDiceBearhttps://github.com/dicebear/dicebearhttps://creativecommons.org/publicdomain/zero/1.0/„Initials” (https://github.com/dicebear/dicebear) by „DiceBear”, licensed under „CC0 1.0” (https://creativecommons.org/publicdomain/zero/1.0/)YA
    Yarla98 @lemmy.world
    Posts 1
    Comments 18