BuddhaBeettle @ BuddhaBeettle @kbin.social

Posts

4

Comments

74

Joined

2 yr. ago

I get why they do this, suicide prevention is no joke and should be handled by people that trained for it, some commenter trying to help could cause a lot of harm without meaning to do so and someone that's not in a good mental space could become triggered and/ or spiral into suicidal thoughts themselves after reading these kinds of subjects.

That said, perhaps the mods could link suicide prevention hotlines from all over the world (as you already do for different resources on -TherapyNeurodegenerative Disease Support, ADHD, Autism, Fibromyalgia, etc.). If I were me, Id put those as front and center as posible, and as easy to find as posible by those who need it (say, quote it after the rule about suicide, include it in the resources given, maybe highlight it).

Suicide.org has some great guidelines on how to mention suicide in the media (not the same thing as a mental health forum, I know, but I personally find them very useful regardless when it comes to discussing anything suicide-related on the internet, where you never know who is reading your content).

And remember, if you or someone you know is feeling suicidal, there's help out there! there's people willing to work with you to get through this, please reach out to them.

It depends A LOT on your country and health system / coverage among many other things. But here's my two cents based on a country with public healthcare.
It is a common cathegory in neuropsicological evaluations when a person starts refering to cognitive difficulties that may or may not be quantifiable as of yet. We put this group under "cognitive complain", sometimes their evaluation reveals actual changes in cognitive performance, sometimes it doesn't. This group sometimes progresses throughout the years into dementia, but not always, since many factors can impair your cognitive habilities (stress, depression, anxiety, other conditions like MS, etc.).
The laboratory could benefit then from providing a bunch of hospitals that perform these evaluations with the tests to diagnose the profile they need for the medicine to work (as Ive seen done in my country with many conditions, including rarer types of cancer and rare genetical disseases). The lab benefits cause otherwise, no one would buy the drug and no coverage would approve it without proof its going to work. This works becuase anyone, money or not, can schedule an evaluation and these hospitals when they have cognitive complaints.

There´s also clinical trials and or other research projects usually in place in these kinds of hospitals, already studying and performing various tests on dementia patients. Elly lilly just has to find and support a PHD project that studies amyloid buildup and then everyone participating gets tested (and then referred somewhere for treatment with the drug). I dont wanna reveal too much of my life on the internet but Ive seen something awfully similar to this first hand in my own country, a bunch of families got genetical testing for dementia for free, then everyone positive to certain genes got referred for treatment.

As research progresses, some other laboratory may come up with a drug that works for a different type of dementia profile, and then it gets easier because they often strike up deals between the two laboratories. They both eat up the cost of testing, since one of them is likely to benefit from it. It is already done this way for genetical testing for rare disseases (again, we are talking a country where the patient does not need to pay or just pays their monthly fee for private coverage but no extra for these things cause they are covered by law).

Then all they need is to get their medication approved and included in the lists of medicines that are covered by law. There's health coverages specifically for older people that often get deals with the laboratories of medications their patients are more likely to need. you get the ball rolling, probably a patient support program that can help with adherence and provide guidance to the patients and their families as to which documents to submit and where to get their medication covered.

What I mean is, its going to be different in different places, but there are already plenty of medications that require prior testing (sometimes really expensive testing) so the pipeline is already in place. I know nothing of amyloid buildup, but if there's any chance its genetic, then the easier it will be (cause then you take current dementia patients and test their families).

Copy paste a bunch of Lorem Ipsum and you're done

Remember all those posts that sometimes will come up in r/relationship advice or subs like that portraying really vulnerable people that are really down on their luck ("Im a single mom/dad and have to do horrible things so that my children can eat" "Im an abused teen and can't escape my home" "Im trying to escape a borderline cult" etc etc)?

Now, Im sure at least some of those were fake to begin with (I don't have anything against those subs or those stories, but you can't guarantee every single one of them is true). Now imagine if they could put a little edit in the end "thank you all, you are so kind, I managed to sign up into reddit's content program, so if you want to help make sure to upvote and leave some gold, it means so much".

In those subs, people were already helping out how they could (I would often see people offering to send food or stuff to OPs home, things like that)... so that's not gonna backfire at all if its implemented.

Imagine if the songs The KKK Took My Baby Away and Fire of Unknown Origin (took my baby away) are talking about one really unfortunate baby that keeps on being taken away by random stuff.

You can replace reddit.com with reddit.adminforge.de, so say instead of reddit.com/r/ModCoord -- go to reddit.adminforge.de/r/ModCoord

You can scroll your little heart away without giving reddit any traffic

Very cool!
Though in order to prevent implications of lemmy becoming kbin's dinner, maybe Id make the little guy resting on top of kbin's mascot's head instead.

Commenting here because I wouldn't know where else to do so.
I had my kbin set to Spanish (preferred it in English so Im glad I someone else asked how to change that), funny thing is, since yesterday I think, whenever language is set to Spanish the little legend next to the username that indicates how long ago something was posted was in Greek.
Or at least I think it's greek, since I don't read greek.

Upon switching language into English it got resolved, but if I turn it back to spanish, it reads in greek again

Kbin already counts upvotes and boosts, similar to reddit karma.
But it could perhaps be something that stays hidden for everyone but yourself and moderators (provided you are participating in their magazine, otherwise anyone could open a magazine to see everyone elses karma)

But in all seriousness, we would probably ask them what they think about reddit's working environment and a few questions like that, and then everybody would move along

Pretty much like this:

I thought I read "Philly cheesecakes" and for a second there I was widly confused at American's concept of a cake.

Nice username tho.
Saludos desde algún lugar de LATM.

I do see the gif!
They are adorable little demons

Yeah, I gave advice on some smaller / niche, topics. I didn't delete the whole thing, only my most upvoted and/or most recent comments (I went all the way to december 2022, and every comment with more than 20 upvotes). Replaced it all with a link to my kbin.

It was kind of sad reading all the replies that were like "we should put this comment in the FAQ / this is the best comment / this covers everything". I was very throughout and loved speading what I learned, and it pains me a little the few times I lurked in those communities since moving to kbin and see lots of unanswered pleads for advice or straight up terrible advice being given...

Im halfway tempted to start claiming demodded subs and filling them up with instructions on how to move to their kbin/lemmy alternatives.
If they kick me out and ban me I won't find out cause I don't go into reddit no more.

Edit: of course they would never give the subreddits to me, but I find the idea really funny

Yeah, about that... I have a secret to confess.
Im not actually a 2D dog

Some people fake it with children to fake appeareances (they may not care about the child, but they do care about the opinion of the parents or anyone watching), I find it way more telling when looking how they treat animals and pets, since those are often percieved as "inferior beings" and its harder to fake it.

I personally trust my dog's opinion on people upon meeting them.

Yep, I have experience with volunteer work (not on reddit, in an actual organization with good intended objectives).
The organization is great, we are ALL volunteers, from the directives to the everyday volunteers. ALL money made goes back into making the project reach wider, don't want to give many details but money goes into giving out free or very accesible education and health-related services to those in need. We have access to the numbers, its all transparent.

The coworkers are nice, its a very niche area of work and we all know one another (so you also make connections with some important people in the field). Some of us have long lasting friendships. The directives of the organization are a mix of founders and the longer lasting volunteers that want to take on those roles. All positions are decided by vote of the community, anyone from the community can apply to any role and pitch in their ideas to make it better. We do that every six months.
It opens many many doors for you, can't begin to count the amount of stuff I learned, the amount of opportunities that stemed from that (internships, jobs, grants... etc) and volunteers get to use all services the organization provides for free (so I got free education, very discounted health-related services for my family, etc.)

All this to say this is a nice place with a nice working environment (all things reddit is not), that actually gives voice and opportunities to everyone involved.
All that, and we still can't make most of our volunteers stay longer than a few months, because when any other compromise comes up, volunteer work is the first thing to go (which is logical, that's life). So good luck to reddit, getting anyone to stay without the proper tools and right in the middle of the IPO dumpster fire