As far as public support goes, why aren't disabilities and chronic illnesses treated in a similar manner to LGBT issues?
I'm just curious about this. As someone with a chronic illness, I pretty much never hear anyone talk about things related to the sorts of difficulties and discrimination I and others might face within society. I'm not aware of companies or governments doing anything special to bring awareness on the same scale of say, pride month for instance. In fact certain aspects of accessibility were only normalized during the pandemic when healthy people needed them and now they're being gradually rescinded now that they don't. It's annoying for those who've come to prefer those accommodations. It's cruel for those who rely on them.
And just to be clear, I'm not suggesting this is an either or sort of thing. I'm just wondering why it's not a that and this sort of thing. It's possible I'm not considering the whole picture here, and I don't mean for this to be controversial.
This is actually true. Parents of disabled kids were trying to rally in my country for better school support but unfortunately parents of autistic kids couldn't take them (and many are autistic too) because of the noise and commotion that revolves around a protest.
Those are really triggering circumstances and no one wants to be in pain.
It’s really hard for some disabled/chronically ill people to join a protest or a rally/march too. There were a small group of protesters outside Downing Street here in the UK a while back, calling for changes in how disabled people applying for benefits are assessed. I would have loved to join them but it’s so far beyond my capabilities the idea is almost laughable. Creating public awareness or demonstrating your discontent with the status quo is really hard when your practically housebound.
I think the simplest explanation is that LGBT acceptance doesn’t cost anyone anything - in fact it’s the opposite as they no longer have to expend energy on hatred and exclusion. Nothing had to be built or spent to give equal rights to a marginalised group, just a signature on some paper. No government funds needed to be allocated to rolling out this change.
It’s much easier to stop doing something current than to start doing something new. Disability/chronic illness accommodations are extremely varied, costly, take time and money to implement, which creates a natural barrier. From an individual perspective, it costs time and energy to help support someone with a disability or chronic condition. It costs no time or energy to agree that everyone should be treated equitably.
IIRC, the LGBTQ rights gains of the 2010s were accompanied by the message that it’s not a choice.
Too many people still believe that health and ability are markers of virtue. These people believe that a sick or disabled person must be undersleeping, forgetting their vitamins, being lazy, skipping church, eating junk food, or even thinking negative thoughts. It’s a big lie people tell themselves to feel safe. “I do everything right, so nothing bad can happen to me.”
It won’t get any better until everyone realizes that it can happen to anyone.
No chronic illnesses and not LGBTQ here, so please correct me if I get anything wrong.
The reason many LGBTQ issues sees widespread support now wasn’t because governments and companies decided it was ok, it was because of decades of small battles and struggles that really accelerated into widespread acceptance throughout the 10’s, and to which we are already seeing a backlash in terms of the attacks on trans rights (just to note that acceptance is far from complete or just a constant journey in one direction).
Companies adopted pride not because they are allies but because it became more profitable to be pro-LGBTQ than against. Govs don’t work off profitability exactly, but public opinion shifted so far that Obama went from tepidly approving of civil unions to basically every mainstream democrat being pro-LGBTQ now. Even many Republican senators signed on to the Respect for Marriage Act in 2022.
I don’t have a lot of answers for why that doesn’t exist for people with chronic issues / disabilities yet. I’m sure there are many people working to advocate to make it so and I think we all have a responsibility to encourage accessibility as a right. I don’t think anyone saw the acceleration of pro-LGBTQ popular acceptance that was the 10’s coming, and I don’t think you can attribute it to one particular cause. The tough and unsatisfying answer is “it’s complicated,” but I hope that the example of LGBTQ progress can be a source of solidarity and support for advocating for accessibility.
Those of us with chronic disabilities tend to have to be very careful about how we spend our energy. Obviously it varies from person to person, disability to disability. But a lot of us just...can't. We can't lobby our local politicians or run for government positions, we can't go to protests or rallies, we can't volunteer for campaigns--we just can't. Or at least, not much. Again, it'll depend on the person.
And even organizing can take a lot of energy. Someone would have to organize all of us together, across all of these many different disabilities. How do you find them all and reach out to them, let alone manage to do all of that organizing despite your disability?
I know it can happen and that's how the ADA was created, but the hurdles are great.
Totally fair, and I think that’s why allyship and solidarity are so important. I can’t speak to what it feels like to have a chronic disability, but I can amplify the voices of those who do and help to organize broader coalitions in support of accessibility.
Pride makes money. Companies make money off pride merch and it costs them $0 to be inclusive of LGBT+ people.
But god forbid they do anything beneficial if it doesn't make them money or gasp cost money. That's why they actively find new ways to discriminate against disabled people without it being too obvious so they can skirt the law. Plenty of disabled people can do just as good or better at a job than an able bodied person with accommodations, but you're immediately a threat to a company if you request those accommodations. And then of course, just like anti union propaganda, the general public gets told that disabled people are greedy moochers that need to fuck off out of society.
I worked for a company that is vehemently anti WFH. They had everyone working remotely for all of COVID no problem. But now if a disabled person requests WFH as an accommodation they are told it is "not reasonable" and it is denied. It's very easy to get away with discrimination against disabled people because a lot of us are just trying to get through the day. Sitting in a court room to fight a company that will extend the lawsuit as long as possible sounds like my own personal nightmare. Hell, speaking of court even FUCKING JURY DUTY won't accommodate a lot of disabled people. That's literally the government and they don't give a fuck. I speak from experience.
Like most things, the answer is money. They want able bodied workers they can make money off the back of for the minimum amount possible.
Wholeheartedly agree. My previous employer was very big into pride and DEI since at least 10 years ago, when it wasn't as normaliaed as it is today.
However, the office wasn't wheelchair accessible and I complained about it, took me more than 4 years to get them to do something about it because I'm not a wheelchair user, so my requests got denied every time, absolutely zero empathy despite what they used to promote.
As you said, Pride is free marketing, building a ramp costs money
My company sends out an anonymous survey every year and every year I put "what about disabled people for DEI?" every year and every year it is ignored 🥲
Well, I don’t really feel like sharing that I have bouts of nearly debilitating psoriatic arthritis at 33. It’s not something I wanna take pride in. Can’t even get into a rheumatologist for another year.
A lot of the points here are valid but I personally think it's partly because disabled people aren't "pretty". There's a narrow band of what's sort of socially accepted as a disability and if you're not in that band you're kinda screwed. If it's not visible enough you're faking or overexaggerating or a hypochondriac. If it's too visible it's gross and annoying and 'why are you even out if you need everyone to cater to you?'. And when it comes to issues and accepting them, I feel like most people mainly care about the "normal" people who just happen to be apart of that group. Your Ellen DeGenereses and captain Holts and whatnot. Think about it - whenever you usually see disabilities in media, it's usually the same set of easily identifiable ones and a lot of the time the character in question has something that negates it in a way and if it is something more nonstandard, it seems like it's the butt of the joke a lot of the time. And that doesn't really work for disabilities because of how varied they are and how they often need conflicting things. You can't just fight for the nice socially acceptable ones and call it a day.
Same goes for mental illness - it feels like most people are still working from the same set of sterotypes where you're either a deranged maniac or an inaccurate sterotype like a savant with no social skills or maybe a hyper idealised version of said condition. And it's hard to fight for accommodation when people don't even understand what you're fighting for.
People with chronic illnesses frequently don't have the energy to make noise and bring attention to their cause.
People with significant disability usually aren't hiding in the halls of power, blending in. It's significantly easier to hide a non-straight sexuality for long enough that you can be the decision maker who makes reform happen.
Disability is so varied, one person with one disability can't know what it is like to have a different one. This stymies cross-disability advocacy. This gets even harder for family of people with disabilities, who only conceptually maybe understand their loved one's conditions, let alone other people's
Accessibility accommodations can be complex and can be expensive, LGBT+ inclusion is extremely easy and low effort by comparison.
Understanding how disability affects daily life pervasively is harder than understanding "those two people are in love". Most people internally assume everyone else has roughly the same abilities and needs as themselves.
People with congenital conditions are frequently conditioned into not asking for better treatment. They get used to being second class citizens because it's all they've ever known.
"Coming out" with a disability casts doubt on your ability to "perform" in the workplace. It's very risky, the stigma of disability is huge and impacts how people evaluate you
Most people with disabilities don't consider themselves disabled. For example, glasses are one of the world's most common disability aids, but you'll never hear them referred to as such; and rarely will their users consider their poor eyesight a disability. Mobility disabilities are often written off as "I'm just getting old" or "I'm just a little unfit lately" or "it's just an old injury playing up" instead of "I have a medical condition which limits my daily life".
There's more, I'm sure I'm forgetting a bunch.
Edited to add a huge one:
People who are born with disability or who acquire them at a young age are frequently unable to access the type of formal education that allows them to become professionals. This makes it even harder for them to be visible in workplaces, because they're considered "unskilled". It also means you won't see people with disabilities regularly in offices. Out of sight, out of mind for everyone else.
And another:
Money is medical privilege, and the people with the most money make the types of decisions that affect larger quantities of people. For people with disabilities who are born to wealth or who are able to acquire it, their medical conditions can be better treated, managed and therefore hidden. This can result in those people and the people who surround them to not feel like the illness is "a big deal" and hence it's not a priority issue. It's when people with significant money are negatively affected that you begin to hear about the barriers people with no money experience all day long.
I will add another thing. Many disabled people aren't working force
Because they can't/there's no acoomodation, etc
What this means is that they don't generate money
And corporations/capitalism don't care for people who are a burden
LGBT and chronically ill checking in. So, the biggest reason (in the US) is because the chronically ill haven't had their civil rights movement. I think a lot of history books gloss over just how many riots there were pre 2000s to gain basic human rights. Pride parades are not just a big party - they're a commemoration of the stonewall riots. Protests were held annually for years, and cities began sponsoring the marches so they'd become peaceful protests. Now we have parades. It was a constant uphill battle with people fighting against their very existence being illegal. For being jailed, tortured, or murdered for showing their sexuality. For being blamed because someone who's repressed or in the closet considers someone who's out to be "temptation".
LGBT rights are much closer to black and womens rights than they are to chronic illnesses. We don't see people being jailed for needing a wheelchair, or murdered for having an auto immune disease. If you can get a large number of people to riot for the right to work from home, you might get results. Until then we'll have to wait until things change through the legal system.
That all makes a lot of sense, but I would point out that people with disabilities and illness have been murdered for their conditions even in our recent past. It was actually a story about a German politician wanting to remove kids with disabilities from schools which got me thinking about this. It feels like we're one or two bad ideas away from persecution of the sick and disabled becoming a very present concern again.
And personally speaking, it is true what you say that I'm not jailed for my condition, but as far societies willingness to extend accommodations to make life more livable for myself and others like me, it's as if I've been largely under house arrest for over a decade. The isolation and anxiety that people experienced for a brief period during the pandemic has been my everyday life for years and years.
If it's worth anything, all the visibilization, representation and positive portrayal of disability and chronic illness I've ever seen (and it has steadily grown in the past 10 years in my experience) has come through LGBT+ or LGBT+friendly spaces or hand in hand with them (once again, in my experience). I don't known how mainstream it is though, since my browsing habits are not that mainstream
LGBTQ+ issues are kind of a warzone right now, because conservatives see trans rights issues especially as a wedge issue they can use to pull in people who might support gay marriage but still feel confused or grossed out by things like trans women using women's bathrooms.
This conversation eats up a lot of the space that could be used to talk about things that would (should?) actually be less controversial, like accessibility.
Conservatives don't want to talk about it because it would be a straightforward loser for them. Lots of progressives don't have time to talk about it because they're circling the wagons to fight for trans people having the right to... (checks notes) exist.
This isn't to say disability issues aren't as important. The point of intersectional activism is for many disparate groups to fight together against the kinds of people who want to separate them. A rising tide that helps everyone.
It sucks because it's slow and painful and people get increasingly tribal when they feel under threat.
You also need to ask us to implement a solution. "Make this wheelchair accessible" is actionable, but I literally have no idea what OP (or the other people who are saying they agree) want
That's where it gets tough. I know what might be helpful to me, but that may not have any bearing on somebody else's condition. If there's not a general willingness to want to improve society more broadly then it can just come across as noise in terms of the extent of what's called for as compared to what the rest of society is willing to accommodate. And even if my situation is incredibly inconvenient to me, how do I weigh it against the needs of another person whose concerns are potentially greater than my own?
Advocating for glbtq rights does not endanger the main power structure. Advocating for people suffering from chronic illness would require fundamental changes to how healthcare is distributed, and thus directly affect the bottom line of some very powerful interests.
Protections and accommodations for those groups are codified into law much more firmly and with longer tenure as a part of decent society.
By contrast, we're unfortunately not far removed from the time when the word "gay", for example, was commonly used as a pejorative for just about everything. LGBTQIA+ people are also very often attacked and killed for their status as such in the modern world.
So that gap in concrete societal norms and established, ubiquitous law are what demand a more active PRIDE movement right now to help people feel seen and spread awareness to counteract hate and ignorance (which hopefully leads to similar enforced protections for these communities).
There is actually a quite hardcore history of advocacy that cropped up in the civil rights era where folk with disabilities performed some really heroic protest. The tale of Ed Roberts and the "Rolling Quads" is pretty legendary stuff.
The wins established a mostly unchallenged veiw at a legal level that differently abled people deserve to have their participation in society facilliatied. It was a major win...
But with success comes stagnation. Part of why the LGBTQIA+ is so visible is the movement is still marching and there is a secondary purpose to the movement. The visibility of actually running up a flag in those communities is a way to make something potentially invisible visible. To give a sense of solidarity. A lot of subjugation techniques of the past were to make people feel like they couldn't possibly make strides for equality because their numbers were too small. Prides are the antithesis to that form of subjugation and for lost souls cast out from their families to find a non-hostile culture. Prides are run by legacy volunteers and are huge in participation so people who want to gain political points for future votes or as an audience gathering together anyway to advertize to look at tipping their hat to the movement as personally adventageous. They don't nessisarily do it out of generosity and respect. While it's possible they do actually have aligned principles of civil rights it is basic backscratching as the LGBTQIA have something they want. Votes or dollars.
As far as I am aware Disability civil rights advocacy has moved mostly into the pocketsquare and tie political sphere rather than the rough and tumble social advocacy battles where it began and as a result the short memory of society has forgotten the impact and demands of those voices in the villiage square ring of cultural advocacy. Since fewer people are counted on to be tuned into C-SPAN then can be counted at to go paint some rainbows on their faces and participate in a mardi gras style carnival event it doesn't get the same level of attention.
In short - effective cultural advocacy along the lines of the LGBTQIA is driven by communities banding together and going out and being visible in force and making some kind of public fuss. All the better if it's an over the top fun day... Or if you set fire to things and riot that basically gets people talking and asking questions too. Basically whatever works to be the loudest squeeky wheel. Otherwise non-minority folk who don't have to think about your needs will forget to ask you what you need or straight up forget you exist.
Well, as far as I understand "pride" came as a result of years when people have to hide their orientation since in some contries it was a crime and so on. And "now" they do not have to. Actually, these days, I see pride as outdated and overused - either your orientation your private business or it is a public show you put on your visit card (in this case why others should consider it as as a "private").
Not sure to what degree this is relevant for disabled people. Outside or the pride, I see many things are done to include disabled people in sociaty:
-Trains and buses have support for disabled people and special places. And a lot of info labels here and there
same with mostly all public institutions
many shops are equipped to be reachable
I have never seen people were rud with disabled people, and usually are ready to support
there is special oplimpic games
in schools there are activities to show children how the life of disabled people looks like in person
etc...
ould you show example of discrimination you are talking about - no prime month is not a discrimination (many groups of people do not have it)?
Here's an example of disability discrimination: many doctors' offices don't have any exam tables a person could get on from a wheelchair. If you don't bring a person who can lift you they'll refuse to see you. Even when I'm there to lift my husband some will say that's not possible, but we just do it anyway.
By not having a table that lowers (they exist and are great) nor having an orderly to assist, they can avoid dealing with anyone with a disability.
And they get away with it because the ADA has no agency of enforcement. You would have to have the time, energy and money to sue each individual inaccessible business in order to make them change, so the burden is on the most vulnerable population.
Airlines are worse, because the airline lobby got them excluded from the ADA entirely.
As for people being rude to those with a disability, it happens all the time. Kids asking questions is not rude btw. I'm talking about rude adults making rude remarks.
A lot of businesses look on people with disabilities as an expense rather than a market. And politically they're too diverse to be considered a voting bloc except for certain issues. But July was Disability Pride Month.... https://www.womansday.com/life/a43964487/disability-pride-flag/
Perhaps reframe it as pride in still living, surviving, sometimes even flourishing in the face of a society that will not accommodate you. It's also a really direct counter to the shame that is so prevalent amongst disabled people. I have an invisible disability and it's taken many years for me to even accept that I am disabled, nevermind be happy with it, you know?
I wouldn't call it pride, but I'm aware that a not insignificant portion of people would have just committed suicide rather than experiencing what I've gone through. Especially people who pride themselves on abilities that depend on being healthy. To experience something like years of torture and then to find a way to keep laughing is not insignificant.
Why shouldn't a person be proud? They constantly use lateral thinking and creativity to maneuver through the world, and their disability is part of their unique identity. Their disabilities cause some of their problems but society causes more. Living with a disability doesn't make a person less worthy of respect, self-respect, or pride in who they are. Having to face attitudes like yours every day is why we need to have celebrations of disability pride.
I would assume that first and foremost it's that, as the old saying goes, the squeaky wheel gets the grease. And disabled people and their advocates aren't squeaky enough.
Cynically, I think there's another explanation...
I think a lot of activism doesn't actually generate meaningful results. To some significant degree, it just serves as something for people to fight over and politicians to fundraise and campaign on.
To serve those purposes though, it has to be controversial - there has to be a basis on which one party can take a stance in favor and the other a stance opposed. And another handy feature of that sort of activism is that it doesn't have to actually be enacted, and in fact, it's better for the politicians if it's not. That means that the ones who supported it can fundraise and run merely on having supported it and on the need to counter the evil other party who opposed it, while those who opposed it can fundraise and run merely on having opposed it and on the need to counter the evil other party who proposed it. And since no money was spent on any program, that's that much more money the politicians can funnel to their cronies. It's basically free publicity with a bit of "Let's you and them fight" mixed in.
And LGBT might as well have been tailor-made for that exact purpose.
But with something like advocacy for the disabled, there's no basis on which either party could dare oppose it, so there's nothing to fight over, and worse yet, if it's proposed, there's no excuse for not passing it, which means they'd have to pay for it, and that's money that they'd rather be funneling to their cronies.
Your place of work should be willing and likely already has a policy in place to accommodate disabilities. Talk to them about your needs.
If that gets you nowhere, seek a less shitty employer. I'd start by trying to find other people with the same/similar disability and asking about the companies they work for. Once you find a good one that's compatible with your area of expertise, keep an eye on their postings.
What you DON'T want to do is just suffer in silence - no company is going to lift a finger for you unless you specifically ask it to.
To add, as most responses here seem correct but I haven't seen this said.
In recent mentors memory there has not been a moral judgement attached to disabilities. There's a lack of societal hate to overcome, everyone agrees disabilities suck and aren't your fault. So there's no rallies, no allies.
For those asking for something that needs help/awareness, chronic pain sufferers (and disabled, but speaking from chronic pain myself) pretty much always have diminished mental clarity due to being in pain or stressed all the time. We can be seen as lazy when we don't have a job or have a hard time contributing, but I think people don't realize that getting medical shit done in america is like a full time job. The amount of hoops you need to jump through, repeat appointments to get your doctor to actually listen to your concerns, dealing with administration of doctors, insurance, and government because THEY STILL COMMUNICATE THROUGH FAXES, and just being dead tired of being a broken human being. You have to shout and scream basically or you will be pushed to the wayside.
So basically, please be aware of invisible illnesses and have patience. We may have the physical capability to do a task on a good day, but shit can get so beaten down. Also medically insurance covered, like, managers/secretaries that help you navigate this bullshit would be great. A real job as a medical advocate for a person should exist.
There could also be more awareness spread against the stigma/stereotype of people coasting off disability. (Often it's snuffed when it's mental) It's not really enough to live on, it can be taken away extremely easily, you have to resign yourself to poverty because if you can make some money you aren't truly disabled. That and disability submission takes 6 months to process, in which most people are denied first just cause. so they then have to get a lawyer to appeal, which takes months+. It's hard to get disability, and it gives you scraps.
Let us use the abilities we have without demanding that we do what we can't. Let us have as much access to society as if possible. Don't shut us out and ignore our existence.
Excuse my ignorance because my only (known) disability is needing corrective lenses.
LGBTQ rights and issues are relatively straightforward (where the goal is to love whoever you love and act like the person you want to be). Disability (to me) is much more of a vague and broad concept so I don't know what the aim of a movement would be.
The causes of disability range from a voluntary or involuntary event, whether it's a workplace incident, sports, car crash, or sometimes people have it from birth. People inflicted with conditions such as blindness, deafness, speech impediment, schizophrenia, or being bound to a mobility or other device like a wheelchair, pacemaker, hearing aid. There's such variety and people need assistance in different ways.
I try to help where I can, but I have trouble offering help sometimes. How do I support someone without calling attention to their disability?
I'm disabled and really we just need people to know and talk about how many of us live in poverty in wealthy countries. Look up how much a disabled person must live on for your part of the world. In my area, I have a bottom of the market, illegal rental suite in middle-of-nowhere farmland and rent takes up 2/3 of my monthly income, this is after we just got a boost to our shelter allowance. I live in Canada, some countries are worse, some are better. We just passed a new law federally that is supposed help a lot, but it will take about a year to get rolling and we've heard these kinds of promises before. We shall see.
A well supported disabled person can still contribute to society in other ways than a full time job, but right now we makeup the bulk of homelessness, a growing problem, globally. This problem is systemic, change must be legislative and that will only happen if these issues are in people's minds and conversations. So just do a bit of googling, find out how much a single person on disability gets, and talk about it with your friends. Get them to talk about it with theirs. If you really want to do your disabled neighbours a solid, write to your elected representative about these issues.
This is true. Many people at my age are at or nearly at the peak of their careers. I'm meanwhile trying to find something....anything that works with the limitations I have. Short of luck, I don't know how to avoid a future which doesn't result in poverty.
Being perceived as gay in public? You get beat. Want to marry your partner? Too bad. Want to be able to advocate for your partner when they’re in the hospital? You’re now trespassing cause your not family. Happen to be watching nieces/nephews? Congrats , you’re now a pedo. The list of atrocities goes on.
This has gotten better over the years due to the protests and pride events
Chronic illnesses are generally met with sympathy. I’ve yet to hear of anyone being beat for their illness except for certain cases of tuberculosis and aids.
Not to say this group should be ignored. It just gets lost relative to everything else. Everyone deserves healthcare and it ends up being drowned out by that I think.
No one will mention it as a reason for violence, but it happens all the time. When people perceive you as different, you will get treated differently. You'll likely experience violence, perhaps in more "subtle" ways, such as getting bullied. It's not seen as discrimination, since people will see you as an outsider and not as a person who behaves differently due to a chronic disease