Lichen sclerosus nightmare (NSFW)

I've had candidiasis-like symptoms for over a year. Creams to address it calm them but as soon as I stop, the whole party starts again.

Finally got a diagnosis: lichen sclerosus.

That hasn't provided any relief though, because I've been on treatment since August and I am not even close to a point where I can say I am stable – even following the treatment to the T, and all the advice about hygiene, clothes, dilation exercises, etc.

My libido is in shambles and I dread looking or touching there. Pain, burning, narrowing of both vagina and anus, blood, cracked flesh... How am I supposed to live with this?

I am planning on getting pelvic floor therapy, but cannot afford the expense right now so it'll have to wait a few months.

Is there anyone with this in the room who can provide a semblant of hope...? How long did it take for you to find balance? Any tricks?

Digital hugs are more than welcome too...