That's how I felt about mid-2020. I had a very mild case of it and it was terrible. That whole numbness to everything really does a number on relationships, work, sleep, …
I can't possibly imaging going through that with stronger symptoms for longer.
Yep I sure do look normal! Would be nice if I had more energy than negative five. Oh? You have energy waking up so I'm lying about how sleep doesn't refresh? Thanks! Yeah my doctor knows and is baffled but my insurance only covers so many tests! Guess I'm just exhausted until I die! Oh I'm still doing stuff? I HAVE TO TO EXIST.
I'm (partially) blind and (partially) deaf. People seem to think you can either see and hear, or you can't. The fact that I often can't hear or see something just seems to annoy people.
If you see me trembling? TELL ME. I sometimes don't notice it and the result can be an explosive burst of temper as fight-or-flight takes hold and I lash out. (I'm prone to the "fight" side.)
If you see me snacking, shut up with snide comments about weight gain. First, you're probably fatter than me. Second, these little snacks are how I keep my blood sugar from cratering and reacting to your snide comments with a knife. (Metaphorical or literal: your choice.)
I've been living with reactive hypoglycemia for decades knowingly, and with a further two decades unknowingly. Trust me. I know waaaaaaaaaaaaaaaay more about this than you.
I know people legitimately think they're helping when they do this but I feel like most people need to learn to keep their mouth shut when they encounter someone with a chronic illness. It's gotten a lot worse in recent years, but it's been an issue my whole life of people saying my rheumatoid arthritis will be cured if I follow some fad diet or buy some scammy product. These days it's essential oils that are supposed to "help" and everyone has some distant relative or friend of a friend who it supposedly worked for. I don't even tell people I have anything wrong with me because most people wouldn't even know otherwise and I don't have to listen to them try to sell me on bullshit or feel pity for me.
How normal I am, or can seem, or can even out perform you. The nuances of a lack of sleep are the real cause of my disability, and no drugs work to change that after a broken neck and back. There is nothing simple or binary about disability, like how the mind of a child views the subject, regardless of the person's age.